Bringing Patient Advocacy Experiences and Insights to the Forefront

The WCG Patient Forum elevates the voices of experts: patients, patient advocates, and professionals in health care and drug development. These voices come together to discuss issues and find solutions that are of critical value to patients.

Ongoing since 2019, the WCG Patient Forum events, video interviews, and podcasts have become an information hub for thousands of research participants and professionals.

Latest Episodes

Series: WCG Patient Forum

Two-Minute Summary of the Fall 2024 Patient Forum

Series: WCG Patient Forum

A Mother’s Journey to Advocacy

Series: WCG Patient Forum

Cross-border Access to Pediatric Clinical Trials

Explore Past Patient Forum Videos:

Explore Patient Forum Videos by Topic

The videos below are individual episodes of the Patient Forum. Click on the thumbnails to watch any or all episodes.

Caregivers & Families

Series: WCG Patient Forum

A Mother’s Journey to Advocacy

Series: WCG Patient Forum

Patient-focused Clinical Trial Communications

Series: WCG Patient Forum

Self Advocacy for Timely Diagnosis of Breast Cancer

Series: WCG Patient Forum

Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy

Series: WCG Patient Forum

A Couple’s perspective on their careers in clinical research while living with Parkinson’s Disease

Series: WCG Patient Forum

Parents of a child with a serious disorder speak about family, community, and advocacy

Series: WCG Patient Forum

Evolving Patient Centric Roles in Cancer Care

Series: WCG Patient Forum

Nurse Navigators Advocate and Support Women Through Their Entire Cancer Diagnosis and Treatment Journey

Series: WCG Patient Forum

Overcoming Access Barriers To Care

Series: WCG Patient Forum

A Family’s Quick Journey from Breast Cancer Diagnosis to Decision Making and Treatment

Series: WCG Patient Forum

Supporting Children When Parents Live with Cancer Diagnosis

Series: WCG Patient Forum

A Program of Support for Families and Caregivers of People Living with Cancer

Series: WCG Patient Forum

Mother of Two Children with Complex Rare Disease Starts Pharmaceutical Company to Create a Treatment

Series: WCG Patient Forum

Father of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials

Series: WCG Patient Forum

Family Concerns and Stress About Going Back Into Public During the Pandemic

Series: WCG Patient Forum

Married Couple Face Down Rare Disease Together

Series: WCG Patient Forum

Speaking out: Stigma, Caregiver Stress and Serious Disease.

Series: WCG Patient Forum

Rare Disease Economic Burden Study and the Impact on Families and Society

Community Engagement

Series: WCG Patient Forum

Citizen Science: Community Engagement in Health Research

Series: WCG Patient Forum

Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background

Series: WCG Patient Forum

Parents of a child with a serious disorder speak about family, community, and advocacy

Series: WCG Patient Forum

Empowering Advocacy Initiatives Rising from Cancer’s Lived Experiences

Series: WCG Patient Forum

Overcoming Access Barriers To Care

Series: WCG Patient Forum

Men Standing Up To Cancer Together

Series: WCG Patient Forum

A Patient Advocate Puts Stigma Aside to Ask Clinician About Epilepsy

Series: WCG Patient Forum

From Patient to Clinical Trial Participant

Series: WCG Patient Forum

Fibromuscular Dysplasia Society of America: Collaboration Between Patients, Researchers, and Physicians Saves Lives

Series: WCG Patient Forum

Sickle Cell Disease Association of America Empowers Research and Better Health Care

Series: WCG Patient Forum

The Collaboration of a Researcher With Breakthrough Science and a Patient In Need of Life Saving Medicine That Might Result

Series: WCG Patient Forum

Parents and Physician Collaborate to Build Patient Advocacy Group From The Ground Up

Series: WCG Patient Forum

The Sickle Cell Disease Association of America Empowers Research and Better Health Care

Series: WCG Patient Radio

My Family, My Community, My Cancer, and COVID

Diversity & Inclusion

Diversifying Parkinson’s Trials

Series: WCG Patient Forum

Mentor Minority Students for Careers in Medicine and Research

Series: WCG Patient Forum

Build a Trial-Savvy Patient Population That Finds and Understands Clinical Trials

Series: WCG Patient Forum

Patient Collaboration and Community Health Centers in Lung Cancer Research

Series: WCG Patient Forum

Access Challenges: Patients Connecting To Clinical Trials

Series: WCG Patient Forum

Alzheimer’s Disease: A Patient Speaks

WCG Insights

Series: WCG Patient Forum

Alzheimer’s Stories – A Choral Performance that Educates

Series: WCG Patient Forum

Alzheimers Stories – Complete Performance

Series: WCG Patient Forum

Minority Community Engagement and Intercultural Communication

DEI

Series: WCG Patient Forum

Cross-border Access to Pediatric Clinical Trials

Series: WCG Patient Forum

Language, Culture, Trauma, and Trust In Healthcare

Series: WCG Patient Forum

Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background

Series: WCG Patient Forum

Clinical Trials Equity and Diversity Where are we now

Series: WCG Patient Forum

Bringing Health Equity to Minority Communities in Chicago

Series: WCG Patient Forum

Cancer Survivor Educates Community at the Black Women’s Expo

Series: WCG Patient Forum

Putting a Clinical Trials Research Site in an Underserved Community

Series: WCG Patient Forum

Optimism and Inclusion in Alzheimer’s Clinical Trials

Series: WCG Patient Forum

Reaching the African American Patient and Mentoring the Next Generation of Black Medical Students

Series: WCG Patient Forum

The Black Women of WCG on the Role of Mentoring Young Minorities to Pursue Careers in Healthcare and Clinical Research

Series: WCG Patient Forum

Providing Advanced Clinical Care with an Impact in an Economically Challenged, Ethnic and Medically Underserved Community

Series: WCG Patient Forum

Using Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum

Series: WCG Patient Forum

Increasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust

Series: WCG Patient Forum

Meet Lori Abrams, WCG’s Executive Director of Patient Advocacy & Diversity

Series: WCG Patient Radio

Site Perspective: Access Issues Cause Health Disparities

Series: WCG Patient Forum

Sickle Cell Disease: Rare Disease Minority Patients Face Access Challenges

Diversity & Inclusion

Sponsor Perspective: Diversify Your Clinical Trials Like This!

Series: WCG Patient Forum

Performing Arts: Theater for An At-Risk Community

Diversity & Inclusion

Clinical Trials and Underserved Community Health Centers

Diversity & Inclusion

Build Trust with Language, Culture, and Commitment

Series: WCG Patient Forum

Speaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago

Series: WCG Patient Forum

New Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion

Series: WCG Patient Forum

The Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients

Diversity & Inclusion

Mental Health Services for an Underserved LatinX Community

Diversity & Inclusion

Providing Mental Health Services in Underserved Asian Communities

Series: WCG Patient Forum

Mentor Minority Students for Careers in Medicine and Research

Series: WCG Patient Forum

Sickle Cell Disease Community and Breakthrough Gene Editing Drug Approvals

Minority Health

Series: WCG Patient Forum

Cross-border Access to Pediatric Clinical Trials

Series: WCG Patient Forum

Speaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago

Series: WCG Patient Forum

Reaching Underserved Communities To Counter Cancer’s Severe Impact

Series: WCG Patient Forum

Preparing the Next Generation of Minority Students for Careers in Clinical Research and Medicine

Series: WCG Patient Forum

The Sickle Cell Patient Experience

Series: WCG Patient Forum

Reaching the African American Patient and Mentoring the Next Generation of Black Medical Students

Series: WCG Patient Forum

New Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion

Series: WCG Patient Forum

The Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients

Diversity & Inclusion

Mental Health Services for an Underserved LatinX Community

Diversity & Inclusion

Providing Mental Health Services in Underserved Asian Communities

Series: WCG Patient Forum

Mental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.

Diversity & Inclusion

Black Health Matters: Transforming Minority Community Health

Series: WCG Patient Forum

Minority Community Engagement and Intercultural Communication

Rare Artists

Series: WCG Patient Forum

Rare Artist: Elizabeth Hoverman

Series: WCG Patient Forum

Rare Artist: Gisela Victoria

Series: WCG Patient Forum

Rare Artist: Grijs Dekruif

Series: WCG Patient Forum

Rare Artist: Maya Rivera

Series: WCG Patient Forum

Alzheimers Stories – Complete Performance

Series: WCG Patient Forum

Performing Arts: Theater for An At-Risk Community

Series: WCG Patient Forum

Nell Choi [Rare Artist 2022]

Series: WCG Patient Forum

Miranda Walker [Rare Artist 2022]

Series: WCG Patient Forum

Wes Burian [Rare Artist 2022]

Series: WCG Patient Forum

Art and Advocacy to Rise Above Isolation of Diagnosis

Series: WCG Patient Forum

Cystic Fibrosis Patient Advocate and Artist to Advocate Award Winner

Rare Disease

Series: WCG Patient Forum

Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy

Series: WCG Patient Forum

A Historic First Drug Approval Based on a Model

Series: WCG Patient Forum

Mother of Two Children with Complex Rare Disease Starts Pharmaceutical Company to Create a Treatment

Series: WCG Patient Forum

Father of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials

Series: WCG Patient Forum

Art and Advocacy to Rise Above Isolation of Diagnosis

Series: WCG Patient Forum

Cystic Fibrosis Patient Advocate and Artist to Advocate Award Winner

Series: WCG Patient Forum

Quantifying the Economic Burden of Rare Diseases on Families and Health Care Systems

Series: WCG Patient Forum

Patient Advocacy Leadership at Its Finest. The Global Liver Institute Rallies Stakeholders to Face Down Liver Disease for Many.

Series: WCG Patient Forum

Cell and Gene Therapy Clinical Trials and Patients at a New Frontier in Drug Development

Series: WCG Patient Forum

Rare Disease Economic Burden Study and the Impact on Families and Society

Series: WCG Patient Forum

Sickle Cell Disease Community and Breakthrough Gene Editing Drug Approvals

Regulatory/Acts

Series: WCG Patient Forum

A Historic First Drug Approval Based on a Model

Series: WCG Patient Forum

New Study for Policy Makers Documents the Burden of the Diagnostic Odyssey on Rare Disease Families

Series: WCG Patient Forum

The All of Us Research Program: An Interview with Dr. Martin Mendoza

Series: WCG Patient Forum

Sue Peschin, President and CEO of Alliance for Aging Research, Speaks About Priorities in Research, Legislation, and Awareness to Benefit fa

Series: WCG Patient Forum

Breakthrough Cell Therapy Approval and Melanoma Research Advocacy

Technology

Series: WCG Patient Forum

Repurposing Already Approved Medications is Saving Lives

Series: WCG Patient Forum

Advances in Newborn Screening – 30 minute full discussion

Series: WCG Patient Forum

Being the First Patient Dosed in a Life-Saving, Ground-Breaking Pediatric Clinical Trial

Series: WCG Patient Forum

Technology for More Inclusive Clinical Trials

Series: WCG Patient Forum

Speaking of Technology To Ease Patient Burden, Be Inclusive, and Modernize Clinical Research

Series: WCG Patient Forum

N-Lorem Founder Discusses Advancements in Genome Sequencing, Newborn Screening, Regulatory Approaches, and Collaboration with Patients

Series: WCG Patient Forum

Diagnostic Odyssey: Persistent Patients Drive Better Outcomes

Explore WCG Patient Forum Videos by Year

The videos below are individual episodes of the Patient Forum. Click on the thumbnails to watch any or all episodes.

Series: WCG Patient Forum

Two-Minute Summary of the Fall 2024 Patient Forum

Series: WCG Patient Forum

A Mother’s Journey to Advocacy

Series: WCG Patient Forum

Cross-border Access to Pediatric Clinical Trials

Series: WCG Patient Forum

Diversity, Inclusion, and Health Literacy

Series: WCG Patient Forum

Rare Artist: Maya Rivera

Series: WCG Patient Forum

Rare Artist: Grijs Dekruif

Series: WCG Patient Forum

Rare Artist: Gisela Victoria

Series: WCG Patient Forum

Rare Artist: Elizabeth Hoverman

Series: WCG Patient Forum

Self Advocacy for Timely Diagnosis of Breast Cancer

Series: WCG Patient Forum

Patient-focused Clinical Trial Communications

Series: WCG Patient Forum

Language, Culture, Trauma, and Trust In Healthcare

Series: WCG Patient Forum

Sickle Cell Disease Community and Breakthrough Gene Editing Drug Approvals

Series: WCG Patient Forum

Minority Community Engagement and Intercultural Communication

Series: WCG Patient Forum

Breakthrough Cell Therapy Approval and Melanoma Research Advocacy

Series: WCG Patient Radio

One Minute Summary of May 2024 Patient Forum

Series: WCG Patient Forum

Parent Initiative Tackles Data Challenges In Rare Disease Research with Nasha Fitter

Series: WCG Patient Forum

Biomarkers as Surrogate Endpoints To Modernize Rare Disease Clinical Trials with Mark Dant

Series: WCG Patient Forum

Mentoring Nurses, Strengthening Communities, and Health Equity with Jaliza Johnson

Series: WCG Patient Forum

Citizen Science: Community Engagement in Health Research

Series: WCG Patient Forum

Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background

Series: WCG Patient Forum

New Study for Policy Makers Documents the Burden of the Diagnostic Odyssey on Rare Disease Families

Series: WCG Patient Forum

Nell Choi [Rare Artist 2022]

Series: WCG Patient Forum

Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy

Series: WCG Patient Forum

A Couple’s perspective on their careers in clinical research while living with Parkinson’s Disease

Series: WCG Patient Forum

Parents of a child with a serious disorder speak about family, community, and advocacy

Series: WCG Patient Forum

Years of Patient Community Empowerment Contribute to Historic Rare Disease Drug Approval

Series: WCG Patient Forum

A Historic First Drug Approval Based on a Model

Series: WCG Patient Forum

Repurposing Already Approved Medications is Saving Lives

Series: WCG Patient Forum

Miranda Walker [Rare Artist 2022]

Series: WCG Patient Forum

Clinical Trials Equity and Diversity Where are we now

Series: WCG Patient Forum

Bringing Health Equity to Minority Communities in Chicago

Series: WCG Patient Forum

Cancer Survivor Educates Community at the Black Women’s Expo

Series: WCG Patient Forum

Speaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago

Series: WCG Patient Forum

Wes Burian [Rare Artist 2022]

Series: WCG Patient Forum

Empowering Advocacy Initiatives Rising from Cancer’s Lived Experiences

Series: WCG Patient Forum

Evolving Patient Centric Roles in Cancer Care

Series: WCG Patient Forum

Nurse Navigators Advocate and Support Women Through Their Entire Cancer Diagnosis and Treatment Journey

Series: WCG Patient Forum

Overcoming Access Barriers To Care

Series: WCG Patient Forum

Advances in Newborn Screening – 2.5 minute summary

Series: WCG Patient Forum

Advances in Newborn Screening – 30 minute full discussion

Series: WCG Patient Forum

A Family’s Quick Journey from Breast Cancer Diagnosis to Decision Making and Treatment

Series: WCG Patient Forum

Being the First Patient Dosed in a Life-Saving, Ground-Breaking Pediatric Clinical Trial

Series: WCG Patient Forum

Mother of Two Children with Complex Rare Disease Starts Pharmaceutical Company to Create a Treatment

Series: WCG Patient Forum

Father of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials

Series: WCG Patient Forum

A Patient Advocate Puts Stigma Aside to Ask Clinician About Epilepsy

Series: WCG Patient Forum

Optimism and Inclusion in Alzheimer’s Clinical Trials

Series: WCG Patient Forum

Technology for More Inclusive Clinical Trials

Series: WCG Patient Forum

From Patient to Clinical Trial Participant

Series: WCG Patient Forum

Men Standing Up To Cancer Together

Series: WCG Patient Forum

Supporting Children When Parents Live with Cancer Diagnosis

Series: WCG Patient Forum

Reaching Underserved Communities To Counter Cancer’s Severe Impact

Series: WCG Patient Forum

Putting a Clinical Trials Research Site in an Underserved Community

Series: WCG Patient Forum

A Program of Support for Families and Caregivers of People Living with Cancer

Series: WCG Patient Forum

Cystic Fibrosis Patient Advocate and Artist to Advocate Award Winner

Series: WCG Patient Forum

Art and Advocacy to Rise Above Isolation of Diagnosis

Series: WCG Patient Forum

Speaking of Technology To Ease Patient Burden, Be Inclusive, and Modernize Clinical Research

Series: WCG Patient Forum

Fibromuscular Dysplasia Society of America: Collaboration Between Patients, Researchers, and Physicians Saves Lives

Series: WCG Patient Forum

Pam Mace, Co-Founder, Executive Director of the Fibromuscular Dysplasia Society of America

Series: WCG Patient Forum

Preparing the Next Generation of Minority Students for Careers in Clinical Research and Medicine

Series: WCG Patient Forum

N-Lorem Founder Discusses Advancements in Genome Sequencing, Newborn Screening, Regulatory Approaches, and Collaboration with Patients

Series: WCG Patient Forum

The All of Us Research Program: An Interview with Dr. Martin Mendoza

Series: WCG Patient Forum

A Beacon of Hope and Support for Young Women of Color with Breast Cancer

Series: WCG Patient Forum

Quantifying the Economic Burden of Rare Diseases on Families and Health Care Systems

Series: WCG Patient Forum

What We Can Learn from Experienced Study Participants: A Panel Discussion

Series: WCG Patient Forum

Patient Advocacy Groups in Action: A Panel Discussion

Series: WCG Patient Forum

The Misunderstood Study Participant: A Panel Discussion

Series: WCG Patient Forum

Sickle Cell Disease Association of America Empowers Research and Better Health Care

Series: WCG Patient Forum

The Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients

Series: WCG Patient Forum

The Black Women of WCG on the Role of Mentoring Young Minorities to Pursue Careers in Healthcare and Clinical Research

Series: WCG Patient Forum

Reaching the African American Patient and Mentoring the Next Generation of Black Medical Students

Series: WCG Patient Forum

Providing Advanced Clinical Care with an Impact in an Economically Challenged, Ethnic and Medically Underserved Community

Series: WCG Patient Forum

The Sickle Cell Patient Experience

Series: WCG Patient Forum

New Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion

Series: WCG Patient Forum

Parents and Physician Collaborate to Build Patient Advocacy Group From The Ground Up

Series: WCG Patient Forum

The Collaboration of a Researcher With Breakthrough Science and a Patient In Need of Life Saving Medicine That Might Result

Series: WCG Patient Forum

Family Concerns and Stress About Going Back Into Public During the Pandemic

Series: WCG Patient Forum

Patient Advocacy Leadership at Its Finest. The Global Liver Institute Rallies Stakeholders to Face Down Liver Disease for Many.

Series: WCG Patient Forum

The Sickle Cell Disease Association of America Empowers Research and Better Health Care

Series: WCG Patient Forum

Using Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum

Series: WCG Patient Forum

Cell and Gene Therapy Clinical Trials and Patients at a New Frontier in Drug Development

Series: WCG Patient Forum

Increasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust

Series: WCG Patient Forum

Married Couple Face Down Rare Disease Together

Series: WCG Patient Forum

Speaking out: Stigma, Caregiver Stress and Serious Disease.

Diversity & Inclusion

Mental Health Services for an Underserved LatinX Community

Series: WCG Patient Forum

Rare Disease Economic Burden Study and the Impact on Families and Society

Series: WCG Patient Forum

Sue Peschin, President and CEO of Alliance for Aging Research, Speaks About Priorities in Research, Legislation, and Awareness to Benefit fa

Diversity & Inclusion

Providing Mental Health Services in Underserved Asian Communities

Series: WCG Patient Forum

Mental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.

Series: WCG Patient Radio

My Family, My Community, My Cancer, and COVID

Series: WCG Patient Forum

Meet Lori Abrams, WCG’s Executive Director of Patient Advocacy & Diversity

Series: WCG Patient Radio

Site Perspective: Access Issues Cause Health Disparities

Series: WCG Patient Forum

Sickle Cell Disease: Rare Disease Minority Patients Face Access Challenges

Series: WCG Patient Forum

Performing Arts: Theater for An At-Risk Community

Series: WCG Patient Forum

Patient Collaboration and Community Health Centers in Lung Cancer Research

Series: WCG Patient Forum

Alzheimers Stories – Complete Performance

Diversity & Inclusion

Clinical Trials and Underserved Community Health Centers

Series: WCG Patient Forum

One Year Anniversary of the WCG Patient Radio Podcast

Series: WCG Patient Forum

Access Challenges: Patients Connecting To Clinical Trials

Series: WCG Patient Forum

Alzheimer’s Disease: A Patient Speaks

Series: WCG Patient Forum

Build a Trial-Savvy Patient Population That Finds and Understands Clinical Trials

Diversity & Inclusion

Build Trust with Language, Culture, and Commitment

Diversity & Inclusion

Diversify Your Clinical Trials Like This! Preparing Communities, Physicians, Families

Series: WCG Patient Forum

Mentor Minority Students for Careers in Medicine and Research

Diversity & Inclusion

Diversifying Parkinson’s Trials

Diversity & Inclusion

Black Health Matters: Transforming Minority Community Health

Series: WCG Patient Forum

Diagnostic Odyssey: Persistent Patients Drive Better Outcomes

Diversity & Inclusion

Sponsor Perspective: Diversify Your Clinical Trials Like This!

Recent WCG Patient Radio Podcasts

Series: WCG Talks Trials

Amplifying Patient Voices to Advance Clinical Research: The Importance of Patient Advocacy

Diversity & Inclusion

The Importance of Diversity, Equity, Inclusion, and Intersectionality in Clinical Research

Series: WCG Patient Radio

Prostate Cancer Survivor Bryce Olson’s Message: “Sequence Me!”

see All wcg Podcasts

MAGI 2025

May 18, 2025 - May 21, 2025 @ Boston, MA