WCG Patient Forum
Bringing Patient Advocacy Experiences and Insights to the Forefront
The WCG Patient Forum elevates the voices of experts: patients, patient advocates, and professionals in health care and drug development. These voices come together to discuss issues and find solutions that are of critical value to patients.
Ongoing since 2019, the WCG Patient Forum events, video interviews, and podcasts have become an information hub for thousands of research participants and professionals.
Upcoming Event: 2024 WCG Patient Forum
Join us on November 14 for the 2024 WCG Patient Forum, “Inclusive Healthcare and Clinical Trials.” This insightful virtual event will feature patient advocates and clinical research professionals as they share their experiences and insights on cultural, language, ethnicity, and community initiatives that have proven successful in creating more inclusive health care and clinical trials.
Latest Episodes
Sickle Cell Disease Community and Breakthrough Gene Editing Drug Approvals
VideosMinority Community Engagement and Intercultural Communication
VideosBreakthrough Cell Therapy Approval and Melanoma Research Advocacy
VideosExplore Past Patient Forum Videos:
Explore Patient Forum Videos by Topic
The videos below are individual episodes of the Patient Forum. Click on the thumbnails to watch any or all episodes.
Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy
VideosA Couple’s perspective on their careers in clinical research while living with Parkinson’s Disease
VideosParents of a child with a serious disorder speak about family, community, and advocacy
VideosEvolving Patient Centric Roles in Cancer Care
VideosNurse Navigators Advocate and Support Women Through Their Entire Cancer Diagnosis and Treatment Journey
VideosOvercoming Access Barriers To Care
VideosA Family’s Quick Journey from Breast Cancer Diagnosis to Decision Making and Treatment
VideosSupporting Children When Parents Live with Cancer Diagnosis
VideosA Program of Support for Families and Caregivers of People Living with Cancer
VideosMother of Two Children with Complex Rare Disease Starts Pharmaceutical Company to Create a Treatment
VideosFather of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials
VideosFamily Concerns and Stress About Going Back Into Public During the Pandemic
VideosMarried Couple Face Down Rare Disease Together
VideosSpeaking out: Stigma, Caregiver Stress and Serious Disease.
VideosRare Disease Economic Burden Study and the Impact on Families and Society
VideosCitizen Science: Community Engagement in Health Research
VideosFounder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background
VideosParents of a child with a serious disorder speak about family, community, and advocacy
VideosEmpowering Advocacy Initiatives Rising from Cancer’s Lived Experiences
VideosOvercoming Access Barriers To Care
VideosMen Standing Up To Cancer Together
VideosA Patient Advocate Puts Stigma Aside to Ask Clinician About Epilepsy
VideosFrom Patient to Clinical Trial Participant
VideosFibromuscular Dysplasia Society of America: Collaboration Between Patients, Researchers, and Physicians Saves Lives
VideosSickle Cell Disease Association of America Empowers Research and Better Health Care
VideosThe Collaboration of a Researcher With Breakthrough Science and a Patient In Need of Life Saving Medicine That Might Result
VideosParents and Physician Collaborate to Build Patient Advocacy Group From The Ground Up
VideosThe Sickle Cell Disease Association of America Empowers Research and Better Health Care
VideosMy Family, My Community, My Cancer, and COVID
VideosDiversifying Parkinson’s Trials
VideosMentor Minority Students for Careers in Medicine and Research
VideosBuild a Trial-Savvy Patient Population That Finds and Understands Clinical Trials
VideosPatient Collaboration and Community Health Centers in Lung Cancer Research
VideosAccess Challenges: Patients Connecting To Clinical Trials
VideosAlzheimer’s Disease: A Patient Speaks
VideosAlzheimer’s Stories – A Choral Performance that Educates
VideosAlzheimers Stories – Complete Performance
VideosMinority Community Engagement and Intercultural Communication
VideosFounder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background
VideosClinical Trials Equity and Diversity Where are we now
VideosBringing Health Equity to Minority Communities in Chicago
VideosCancer Survivor Educates Community at the Black Women’s Expo
VideosPutting a Clinical Trials Research Site in an Underserved Community
VideosOptimism and Inclusion in Alzheimer’s Clinical Trials
VideosA Beacon of Hope and Support for Young Women of Color with Breast Cancer
VideosReaching the African American Patient and Mentoring the Next Generation of Black Medical Students
VideosThe Black Women of WCG on the Role of Mentoring Young Minorities to Pursue Careers in Healthcare and Clinical Research
VideosProviding Advanced Clinical Care with an Impact in an Economically Challenged, Ethnic and Medically Underserved Community
VideosUsing Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum
VideosIncreasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust
VideosMeet Lori Abrams, WCG’s Executive Director of Patient Advocacy & Diversity
VideosSite Perspective: Access Issues Cause Health Disparities
VideosSickle Cell Disease: Rare Disease Minority Patients Face Access Challenges
VideosSponsor Perspective: Diversify Your Clinical Trials Like This!
VideosPerforming Arts: Theater for An At-Risk Community
VideosClinical Trials and Underserved Community Health Centers
VideosBuild Trust with Language, Culture, and Commitment
VideosSpeaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago
VideosNew Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion
VideosThe Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients
VideosMental Health Services for an Underserved LatinX Community
VideosProviding Mental Health Services in Underserved Asian Communities
VideosMentor Minority Students for Careers in Medicine and Research
VideosSickle Cell Disease Community and Breakthrough Gene Editing Drug Approvals
VideosSpeaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago
VideosReaching Underserved Communities To Counter Cancer’s Severe Impact
VideosPreparing the Next Generation of Minority Students for Careers in Clinical Research and Medicine
VideosThe Sickle Cell Patient Experience
VideosReaching the African American Patient and Mentoring the Next Generation of Black Medical Students
VideosNew Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion
VideosThe Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients
VideosMental Health Services for an Underserved LatinX Community
VideosProviding Mental Health Services in Underserved Asian Communities
VideosMental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.
VideosBlack Health Matters: Transforming Minority Community Health
VideosMinority Community Engagement and Intercultural Communication
VideosAlzheimers Stories – Complete Performance
VideosPerforming Arts: Theater for An At-Risk Community
VideosNell Choi [Rare Artist 2022]
VideosMiranda Walker [Rare Artist 2022]
VideosWes Burian [Rare Artist 2022]
VideosArt and Advocacy to Rise Above Isolation of Diagnosis
VideosCystic Fibrosis Patient Advocate and Artist to Advocate Award Winner
VideosNine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy
VideosA Historic First Drug Approval Based on a Model
VideosMother of Two Children with Complex Rare Disease Starts Pharmaceutical Company to Create a Treatment
VideosFather of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials
VideosArt and Advocacy to Rise Above Isolation of Diagnosis
VideosCystic Fibrosis Patient Advocate and Artist to Advocate Award Winner
VideosQuantifying the Economic Burden of Rare Diseases on Families and Health Care Systems
VideosPatient Advocacy Leadership at Its Finest. The Global Liver Institute Rallies Stakeholders to Face Down Liver Disease for Many.
VideosCell and Gene Therapy Clinical Trials and Patients at a New Frontier in Drug Development
VideosRare Disease Economic Burden Study and the Impact on Families and Society
VideosSickle Cell Disease Community and Breakthrough Gene Editing Drug Approvals
VideosA Historic First Drug Approval Based on a Model
VideosNew Study for Policy Makers Documents the Burden of the Diagnostic Odyssey on Rare Disease Families
VideosThe All of Us Research Program: An Interview with Dr. Martin Mendoza
VideosSue Peschin, President and CEO of Alliance for Aging Research, Speaks About Priorities in Research, Legislation, and Awareness to Benefit fa
VideosBreakthrough Cell Therapy Approval and Melanoma Research Advocacy
VideosRepurposing Already Approved Medications is Saving Lives
VideosAdvances in Newborn Screening – 30 minute full discussion
VideosBeing the First Patient Dosed in a Life-Saving, Ground-Breaking Pediatric Clinical Trial
VideosTechnology for More Inclusive Clinical Trials
VideosSpeaking of Technology To Ease Patient Burden, Be Inclusive, and Modernize Clinical Research
VideosN-Lorem Founder Discusses Advancements in Genome Sequencing, Newborn Screening, Regulatory Approaches, and Collaboration with Patients
VideosDiagnostic Odyssey: Persistent Patients Drive Better Outcomes
VideosExplore WCG Patient Forum Videos by Year
The videos below are individual episodes of the Patient Forum. Click on the thumbnails to watch any or all episodes.