Insights
Series: WCG Patient Radio
Mark Dant, Pushing for Research that Saved his Son’s Life in the Fight Against MPS I and Advocating for Change
Podcasts
Series: WCG Patient Radio
Dr. Emil Kakkis: Developing Novel Treatments for Rare Disorders and Connecting With Patients as Critical Partners in Research
Podcasts
Series: WCG Patient Radio
Sarah Tompkins, on having Ehlers-Danlos Syndrome, having a mis-understood disease, taking a lead in advocacy
Podcasts
Series: WCG Patient Radio
Sarah Zentack, Leslie Urdaneta: Ensuring Genetic Counseling is Incorporated Into the Patient Experience
Podcasts
Series: WCG Patient Radio
Amanda Moore: An Inside look at Angelman Syndrome
Podcasts
Series: WCG Patient Radio
Karmen Trzupek, MS, CGC, Director of Ocular & Rare Disease Genetic Services: The Role & Importance of Genetic Counselors to Patients
Podcasts
Series: WCG Patient Radio
Kristin Smedley of the Curing Retinal Blindness Foundation: Learning How to See Differently
Podcasts
Clinical Research Trends & Insights for 2020
Whitepapers
NIH Launches NExTRAC to Advise on Emerging Biotechnologies
Blog Posts