Bringing Patient Advocacy Experiences and Insights to the Forefront

The WCG Patient Forum elevates the voices of experts: patients, patient advocates, and professionals in health care and drug development. These voices come together to discuss issues and find solutions that are of critical value to patients.

Ongoing since 2019, the WCG Patient Forum events, video interviews, and podcasts have become an information hub for thousands of research participants and professionals.

WCG Patient Forum

Bringing Patient Advocacy Experiences and Insights to the Forefront

Latest Episodes

Parent Initiative Tackles Data Challenges In Rare Disease Research with Nasha Fitter

Biomarkers as Surrogate Endpoints To Modernize Rare Disease Clinical Trials with Mark Dant

Mentoring Nurses, Strengthening Communities, and Health Equity with Jaliza Johnson

Explore Past Patient Forum Videos:

Explore Patient Forum Videos by Topic

Nine Year-old Nell Choi’s Hospitalization, Her Book, Her Family, and Her Legislative Advocacy

A Couple’s perspective on their careers in clinical research while living with Parkinson’s Disease

Parents of a child with a serious disorder speak about family, community, and advocacy

Evolving Patient Centric Roles in Cancer Care

Nurse Navigators Advocate and Support Women Through Their Entire Cancer Diagnosis and Treatment Journey

Overcoming Access Barriers To Care

A Family’s Quick Journey from Breast Cancer Diagnosis to Decision Making and Treatment

Supporting Children When Parents Live with Cancer Diagnosis

A Program of Support for Families and Caregivers of People Living with Cancer

Mother of Two Children with Complex Rare Disease Starts Pharmaceutical Company to Create a Treatment

Father of Two Boys with Rare Neurological Disease in Pediatric Clinical Trials

Family Concerns and Stress About Going Back Into Public During the Pandemic

Married Couple Face Down Rare Disease Together

Speaking out: Stigma, Caregiver Stress and Serious Disease.

Rare Disease Economic Burden Study and the Impact on Families and Society

Citizen Science: Community Engagement in Health Research

Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background

Parents of a child with a serious disorder speak about family, community, and advocacy

Empowering Advocacy Initiatives Rising from Cancer’s Lived Experiences

Overcoming Access Barriers To Care

Men Standing Up To Cancer Together

A Patient Advocate Puts Stigma Aside to Ask Clinician About Epilepsy

From Patient to Clinical Trial Participant

Fibromuscular Dysplasia Society of America: Collaboration Between Patients, Researchers, and Physicians Saves Lives

Sickle Cell Disease Association of America Empowers Research and Better Health Care

The Collaboration of a Researcher With Breakthrough Science and a Patient In Need of Life Saving Medicine That Might Result

Parents and Physician Collaborate to Build Patient Advocacy Group From The Ground Up

The Sickle Cell Disease Association of America Empowers Research and Better Health Care

My Family, My Community, My Cancer, and COVID

Diversifying Parkinson’s Trials

Mentor Minority Students for Careers in Medicine and Research

Build a Trial-Savvy Patient Population That Finds and Understands Clinical Trials

Patient Collaboration and Community Health Centers in Lung Cancer Research

Access Challenges: Patients Connecting To Clinical Trials

Alzheimer’s Disease: A Patient Speaks

Alzheimer’s Stories – A Choral Performance that Educates

Alzheimers Stories – Complete Performance

Founder of DNPs of Color Offers Collaboration to Nursing Academics of Minority Background

Clinical Trials Equity and Diversity Where are we now

Bringing Health Equity to Minority Communities in Chicago

Cancer Survivor Educates Community at the Black Women’s Expo

Putting a Clinical Trials Research Site in an Underserved Community

Optimism and Inclusion in Alzheimer’s Clinical Trials

A Beacon of Hope and Support for Young Women of Color with Breast Cancer

Reaching the African American Patient and Mentoring the Next Generation of Black Medical Students

The Black Women of WCG on the Role of Mentoring Young Minorities to Pursue Careers in Healthcare and Clinical Research

Providing Advanced Clinical Care with an Impact in an Economically Challenged, Ethnic and Medically Underserved Community

Using Data to Bring Change for Minority Health: An Interview with Dr. Gary Puckrein, President & CEO of the National Minority Quality Forum

Increasing Capacity to be More Inclusive and Reduce the Negative Impact on Health of Stigma, Discrimination and Mistrust

Meet Lori Abrams, WCG’s Executive Director of Patient Advocacy & Diversity

Site Perspective: Access Issues Cause Health Disparities

Sickle Cell Disease: Rare Disease Minority Patients Face Access Challenges

Sponsor Perspective: Diversify Your Clinical Trials Like This!

Performing Arts: Theater for An At-Risk Community

Clinical Trials and Underserved Community Health Centers

Build Trust with Language, Culture, and Commitment

Speaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago

New Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion

The Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients

Mental Health Services for an Underserved LatinX Community

Providing Mental Health Services in Underserved Asian Communities

Mentor Minority Students for Careers in Medicine and Research

Speaking of Participation in Clinical Trials at the Latina Women’s Expo in Chicago

Reaching Underserved Communities To Counter Cancer’s Severe Impact

Preparing the Next Generation of Minority Students for Careers in Clinical Research and Medicine

The Sickle Cell Patient Experience

Reaching the African American Patient and Mentoring the Next Generation of Black Medical Students

New Medical Student, Kennedy Johnson, Shares Her Inspiration and Vision for Minority Health Equity and Inclusion

The Role of Trust, Culture Competence and Generous Sharing of Time to Provide Better Healthcare to Vulnerable Underserved Patients

Mental Health Services for an Underserved LatinX Community

Providing Mental Health Services in Underserved Asian Communities

Mental Illness: Patient Advocate Wenora Johnson speaks of her family and coping with mental illness in minority communities.